The Aidan Jack Seeger Foundation was established in 2012 to address the need for information about adrenoleukodystrophy (ALD) and provide financial assistance to families coping with the cost of care. AJSF also promotes newborn screening of ALD (Aidan’s Law). AJSF is a community supporting and encouraging families of those afflicted by ALD as they struggle to cope with the demands of the disease by:
Providing financial support to families of children with ALD
Funding research efforts that will identify new treatments, therapies and ultimately, a cure for ALD
Raising awareness of ALD and increasing the probability of early detection and treatment
Advocating for newborn screening of ALD in 50 U.S. states (Aidan’s Law)
Aidan’s family has been blessed with support from all over the world. Aidan’s Facebook group is reaching 20,000 members who’ve journeyed with Aidan’s family, the Seegers. The community’s social media posts, letters, cards and gifts have made the Seeger’s days brighter.
In serving families coping with ALD, AJSF pays tribute to Aidan. He suffered enormously and showed them the meaning of kindness, hope and LOVE. The foundation’s mission is to save future American boys and their families from this unimaginable (and needless) suffering.