Aidan’s Law (H.R. 5453) is a House of Representatives bill which will require (and fund) ALD screening in all 50 U.S. states. The bills were introduced to the U.S. congress in April 2018 by Congresswoman Yvette Clarke and Congressman Lee Zeldin, as a bipartisan bill. It is the updated bill from 2016 Senate Bill S. 2641 and House Bill H.R. 4692 U.S. Senator Charles Schumer, D-NY, and U.S. Representative Yvette Clarke, D-NY, are sponsors of the Senate and House bills, respectively. Co-sponsors of the Senate bill include: Senator Kirsten Gillibrand, D-NY; Senator Michael Bennet, D-Colo; Senator Barbara Mikulski, D-Maryland and Senator Richard Blumenthal, D-CT. Representative Ellot Engel, D-NY and Rep. Antonio Cárdenas, D-CA are co-sponsors of the House bill.
The bills, when passed by each chamber of congress, will be joined as a reconciled bill – and sent to the President of the United States for signing into law.
Currently, newborn disease and disorder screening is a state-by-state matter, legally. A state version of Aidan's Law was passed in New York in 2013; to date 10 States have implemented ALD Newborn Screening: New York, Connecticut, California, Pennsylvania, Minnesota, Washington, Tennessee, Florida, Nebraska and Kentucky are the only U.S. states screening newborns for ALD. The federal Aidan's Law, when passed, will override this state-by-state patchwork of ALD screening policies. All 400 million annual American newborns will, by U.S. law, be tested for ALD.